The Fenway Institute’s National Center for Innovation in HIV Care has released its first issue brief, Enhancing the Sustainability of Ryan White-Funded AIDS Service Organizations and Community Based Organizations, which shines light on the changes and challenges facing today’s HIV/AIDS non-profits, research center, and community organizations.
This issue brief describes important changes occurring in the U.S. health care system that are allowing thousands of people living with HIV to more easily access life-saving services. It describes the fiscal state of AIDS Service Organizations (ASOs) and Community-Based Organizations (CBOs), and the need for these organizations to fundamentally restructure the way they do business in order to better serve their clients and adapt to changes in HIV funding, policy, and research. The brief also discusses sector transformation and describes options available to ASOs and CBOs to respond to the changing environment. In its conclusion, the brief offers next-step recommendations for ASOs and CBOs, based on the experience of dozens of organizations across the country that have successfully navigated this sector transformation.
“In the 1980s when our government abandoned us, our families often rejected us, and people were getting sick and dying by the thousands, courageous and visionary leaders came together and formed volunteer-led AIDS service organizations like Gay Men’s Health Crisis and AIDS Project Los Angeles. These important community institutions have developed an effective model for comprehensive care and essential enabling services that has helped thousands of people thrive while living with HIV,” said Sean Cahill, Director of Curriculum and Policy at the National Center for Innovation in HIV Care and coauthor of the sustainability issue brief. “We present lessons from the field and best practices from leaders working to transform ASOs across the country, so that these important community institutions can navigate changes in health care policy and funding, increase their sustainability for the long haul, and further improve HIV treatment outcomes for their clients.”
The National Center for Innovation in HIV Care would like to extend special thanks to this brief’s contributing authors: Vignetta Charles, Matthew Hadrava, Jeffrey S. Crowley, Kandy Ferree, Robert Greenwald, Carmel Shachar, and Sean Cahill.
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